A new coalition of six national autism nonprofit organizations has been created to prevent wandering incidents and deaths within the autism community. The collaboration, Autism Wandering Awareness Alerts Response Education (AWAARE), has launched AWAARE.org in a joint effort to raise awareness and provide information to caregivers, law enforcement, school officials and the medical community. Coalition member organizations are AutismOne, Autism Speaks, the Doug Flutie Jr. Foundation for Autism, the HollyRod Foundation, the National Autism Association (NAA), and Talk About Curing Autism (TACA).
“The AWAARE Collaboration will work to prevent wandering incidents and wandering-related deaths within the autism community through the use of collective organizational resources, and by establishing and monitoring objectives, guidelines, policies, and tools that will promote awareness, education, prevention and safety.”
To help parents and professionals, AWAARE has collected information to help prevent wandering, to recommend responses, to inform first responders, and to inform IEP teams of the dangers. Please visit their website for details, as well as downloadable forms to prepare for your family.
Did you know that children with Medicaid might qualify for Project Lifesaver under the EPSTD (Early Periodic Screening Treatment and Diagnosis)? If not, there are other grants that might help—the National Autism Association’s FOUND grant provided the funds for Orange County to begin serving families. Contact your local police department to see if they have Project Lifesaver or another program to help find people with autism who wander. Unfortunately, I have not been able to find such a list online; if I do locate one, I’ll post it soon. Please let me know if you have such a list, and I’ll post the link!
Usually articles about this serious topic include links to news releases about children who have wandered and either been found or not…but I find them too painful to read, frankly. We all know that having a child wander (regardless of the “child’s” age) is a terrifying event. My imagination is too active, anyway—don’t need help with that.
If your local Police/Sheriff’s department doesn’t have a program to help wandering children, encourage them to get one! Does your child have Project Lifesaver, LoJack SafetyNet, or some other program? Does it work/do you like it? Tell your story…